Saturday, October 28, 2017

Look on the Bright Side!


Have you ever blown a head gasket? I don’t mean lose your temper, as the idiom is defined. I mean, have you ever been in a car that loses a seal in the engine? I have, and it taught me one of the best life lessons I have ever learned.

It was more than 15 years ago.  My husband received a check in the mail from a 401K from a former employer.  Frankly we had forgotten about the account and were quite surprised by this blessing from out of the blue. We decided to use it to buy another car since our primary vehicle had mechanical issues and very high mileage. The check we received was exactly enough to pay for a car our neighbor was selling and to register it as well. So we happily put the check to good use and bought the car. 

The  next day I planned to go to the motor vehicle department after work. As I was backing the old clunker out of the driveway for what ended up as the last time, I suddenly remembered the cell phone.  In those days my husband and I shared a cell phone and most of the time it sat in the house. It was 2002 and we were just beginning to catch onto the idea that cell phones could be handy. I thought to myself, “What if I break down?” Why that idea popped into my head, I’ll never know. Yet, I pulled back into the driveway and grabbed our cell phone from the kitchen and stashed it in my purse.

The ride started out like a typical ride to the office.  But that calm feeling did not last long. I was on the highway, less than five miles from the house when there was a loud bang and steam started to pour out from under the hood.  There was so much steam I could barely see where I was going. Fortunately I knew the road well and knew that there was a highway rest area just ahead.  I limped along on the highway for about a mile and coasted into the highway rest stop where the car died. Instinctively I knew that I had blown the engine.

My husband was at work and since I had dropped him off that morning I knew he would not be able to rescue me. My mind was racing as I contemplated who I should call. I decided to try our friend Tom since he worked nights; he might be willing to be my knight in shining armor. The timing could not have been better. At the precise moment I called he was on his way out of the house to run some errands. Oddly enough, he had decided to go back inside to grab a jacket when he heard the phone ring. He was only too happy to lend assistance and promised he’d be there in about 45 minutes. Quick calls to my boss and my husband apprising them of the situation followed.

So, what was I to do for the next 45 minutes to an hour? After strolling to the visitor center to get a drink I settled down at a picnic table to reflect on my current situation. Before long I pulled out a notebook and wrote:

I am thankful for:
·        The timing on the check. It allowed us to purchase the other car the night before
·        The children were not with me when I broke down
·        The prompting to get the cell phone “in case I had car trouble.”
·        The fact I caught Tom at the exact moment he was unlocking his door to return inside and that he was willing to come get me
·        It was a beautiful Spring day
·        I was able to limp to the rest area and was not sitting on the side of the Interstate
·        I was at a rest area that provided vending machines and bathrooms to make my wait a bit more comfortable
·        When I spoke to a police officer about potentially having to leave the car there for a while until we figured things out, he simply said, “Lady, we’ve got bigger problems to worry about. There is a wrong-way driver about 5 miles up the Interstate from here.”

Had I continued on my pathway to work, I would have encountered the chaos that a driver going the wrong way created. God, in His wisdom and timing, protected me from danger. He had provided my family with another vehicle at the precise time that we needed it, essentially at no cost. He also sent me a friend who was willing to rearrange his day to pick me up and take me to the motor vehicle department so that when I returned home all I had to do was put the plates on the new car.

I had two choices that day. I could have pounded my fists and gotten angry that the car broke down. Instead, I chose to see the blessings for what they really were. God was there, in the midst of my troubles. Sometimes all we need to do is to look for Him. Sometimes, if we listen hard enough, we can hear him whisper as one does to a child, “I am here. You’re safe. You’ll be ok.” Which will you choose the next time you are faced with an unforeseen circumstance?

My mother used to say that we need to “Look on the bright side.” As difficult as that may be, it is important to sift through the rubble of our lives and see that there truly is something to be thankful for even when things seem their darkest. When we start to see blessings all around us, we start to really appreciate things for what they are. Do you see the blessing or do you see the chaos? Which do you choose today?

Reflection:
1.      Think of a time when things were going wrong. Describe your feelings. Were you angry? Confused? Were you able to see the blessing?

2.      As a caregiver, it is easy to get caught up in the day to day chaos and miss out on the “silver lining.” What are some steps you can use to combat the clouds? (Every cloud has a silver lining.)

Monday, October 23, 2017

Trying to Minimize Holiday Stress


So the holidays are fast approaching. It is hard to believe that it is almost time to think about Thanksgiving. For as long as I can remember, my family has hosted a large gathering of family and friends. Often, we'd squeeze twenty or more people around the table. I always cooked from scratch and set a fine table with the my in-law's wedding china. We have quite a lot to be grateful for! Every day is a gift.

Far too often caregivers get caught up in the details of the holiday celebrations and create too much additional stress for ourselves and our families. One of the hardest things about a chronic illness or disability is the fact that things are quite unpredictable. It is almost impossible to predict if our loved one will have a good day or a bad. There's  always the dilemma over what to do. Do we accept that invitation or not? Should we have people over? Do we keep with the family traditions or do something different?

When I am speaking to groups about alleviating caregiver stress I make a few simple suggestions regarding holiday celebrations:

  • If you must go "all out," pick one holiday and make it your own. As I said previously, I made Thanksgiving "our" holiday. Perhaps you'd like to make Memorial Day your holiday and host a back yard bar-b-que following the Memorial Day parade. Or perhaps a Super Bowl party is more your speed. It is better to do one celebration well than try to do all of them and exhaust yourself.
  • Simplify. Holiday decorations that rival the Hallmark Channel Christmas specials look spectacular on Pinterest but really are not necessary. You can tastefully decorate with minimal effort and still feel festive. If you typically cook traditional meals, cut back on the menu and make just a few favorites. Sometimes less = more. 
  • Many of us in the midst of caregiving have neither the time nor the money to buy gifts for large families. Perhaps it is time to modify the way your family exchanges gifts. Some families draw names. Others buy for only the little children. Gift cards are an option, too. Do some brainstorming with other family members to find something that works, even if that means eliminating the gift exchange entirely. 
  • Potluck. Ask others to bring a dish to share. 
  • Shop on line. If you are fortunate enough to have grocery stores in your area that offer on line ordering and delivery service, take advantage of it! You can have food delivered right to your doorstep and never have to fight the long lines.
There are plenty of other ways in which you can simplify your holidays. I suppose the first place to start is by prioritizing what is special to you and your family. 

This year I am contemplating how I can best serve my husband and also have family involved in our Thanksgiving dinner. Instead of our large gathering, I have decided to cook a few traditional favorites for the two of us and then have others come for dessert. It's a far cry from what we are used to. It saddens me, in a way. But, when I consider how exhausted he becomes after dialysis treatments I know in my heart that it is probably best we scale things back. 

We DO have a lot to be grateful for despite the break in tradition. I hope you can say the same! 


Monday, October 16, 2017

A Most Satisfying Feeling of Exhaustion



It's Monday morning and I have to admit that I am physically and mentally exhausted. But for once, it is a good feeling!

For the past six months my husband had either been hospitalized or in rehab. Yesterday, he came home.  I am overjoyed to have him back yet if I am perfectly honest I must admit I am somewhat apprehensive. Since July he has required dialysis three times a week and is much more wheelchair dependent than he was previously.  Six months is a long time to live apart. It is going to take some adjustment to get used to a new routine.

The ironic thing is that on Saturday I presented a seminar on caregiver stress. LOL.  The photo above is from the conference I attended/ presented at.

Last week was a whirlwind as I tried to get all the details at home taken care of : doors removed (to fit a wheelchair), the bathroom door rehung, grab bars, a new shower head, a wheelchair ramp installed and switching our bedroom/living room and dining rooms all around to make things a bit more wheelchair friendly. The "to do" list was long. Yet, with the help of some great friends and family, it was all taken care of in time for his homecoming.

In the chaos of getting the house in order, I prepped for my seminar. It's almost comical, if you think about it. Here I was, preparing to talk to others about alleviating caregiver stress and I felt so out of control at times. I need to practice what I preach.  I truly do, especially the part about not taking on too much and being a martyr. Those who lent a hand last week were a God -send. I could not have done it without them. I am still amazed and ever so grateful.

So, once again my family is adjusting to a "new normal." This time, the normal is having Larry home. And frankly, all the other stuff was worth it in order to have him back. I am going to like this new normal, despite the tiredness. It's awesome.

Thursday, September 7, 2017

What Do You Miss?

Recently I have been giving a lot of thought to a question that was posed on a forum for caregivers. The question was something like this: What do you miss most since you became a caregiver?

It did not take very long for me to compose my answer. I miss doing things with my husband as opposed to doing things for my husband.

To be perfectly honest, I cannot even begin to figure out when we made the transition from a “normal  couple” to full time caregiver/care receiver. It snuck up on us when we weren't paying attention. There once was a time long ago when we enjoyed everyday activities such as preparing a meal together, working in the yard, taking walks,  DIY projects, going places together (other than doctors’ appointments), pillow talk. There was a time we laughed together often, entertained friends, traveled, made love….Life was good. There was no denying it.

No one could have predicted that our lives would be turned upside down. Yet, chronic illness and disability have a way of doing that. It has robbed us of many opportunities to enjoy life. It has isolated us. It’s stripped our dreams away. It’s changed how we interact with one another.

These past few months as my husband has been hospitalized or in rehab I have had a few chances to get out of the house and enjoy some leisure activities with friends. As relaxing and fun as it was, it wasn’t nearly the same as enjoying it with my husband. However, if I am honest I have to admit that watching other couples holding hands and laughing or dancing together or simply choosing paint at the hardware store pains me once in a while. I miss “us.” I miss the crazy, spontaneous, fun-loving couple we once were.

So, what are we, the couples living with chronic illness to do? If your spouse is a shut-in or if he/she is in long term care, how do you maintain a sense of being a couple? How do you avoid the trap of becoming simply a care giver and care receiver? What do you miss?


I’d welcome your comments.

Saturday, September 2, 2017

I have a website!

Follow the link to my new website. I am actually quite excited about speaking at a women's conference in October as well as starting another Powerful Tools for Caregivers class at the end of September. All this practical experience has to be good for something. :) I welcome your feedback.

Saturday, August 26, 2017

Helping Those Who Need it Most

There is a link below to a blog written by Herb Reese of New Commandment Men's Ministries. In his blog, he included a letter from a woman he knows who has had to deal with chronic illness and disability in her family for many years.

I have to admit: I am the woman who wrote to Herb. For a number of years I  have been envious of the people that are served by his ministry. New Commandment Men's Ministries serves widows and single mothers by equipping and training churches to develop teams that will roll up their sleeves and provide help to those who need it on a consistent basis.

It's true that over the years my family has been blessed beyond measure by friends, family and the church. I love each and every one of you who have helped. I truly do. And I do not want to appear ungrateful. But the help is inconsistent. And frankly, the further down this path we travel (it has been years!) the less support is there.

Many well- meaning people have said, "I don't know how you do it."  If you look around, you'll see I am not doing it. Do you see my lawn? the grass is up to my calf. The weeds in my garden? The stack of bills? Dishes? Home repairs that are screaming to get done? The "to do" list is getting longer each day and it is almost impossible to juggle all the needs of my family.

Chronic illness sucks.

This week alone, I have been ping-ponging between two healthcare facilities as one member of my immediate family is in the hospital and another was transferred to sub acute care and rehab.

And I am at the end of my rope.

Ironic isn't it? I have this great desire to help caregivers in their struggles and yet here I am. Most likely I have crossed over from feeling caregiver stress to burnout. I don't need a mental health day. I need an escape from reality.

Take a moment to read what I wrote to Herb and his response via his blog. And please remember to set aside some time to help someone in need. It doesn't need to be much. Spend an hour pulling weeds, for instance. Your efforts will go a long way in making someone's life a little easier.

If Your Church Really Wants to Help, Consider This


Friday, June 23, 2017


Less than a week ago my husband Larry was brought to the hospital in septic shock. He had been home 16 days after being hospitalized and in rehab for 8 weeks. The past few days have been a whirlwind as we have tried to come to grips with the reality of the situation. Once again, he has defied the odds simply by surviving. It is uncertain what the outcome will be. He has some hurdles to overcome. Doctors do see some improvement if you go strictly by the lab results. He was moved out of the ICU. We wait to see what the future holds.

As you can imagine, once word got out  that he was hospitalized I was bombarded with questions, including inquiries about how I am handling the crisis. I've pondered that question most of the week. It's been a roller coaster, to say the least.

In answer to the question about how I am doing, this is what came to mind:

I visualize the two of us walking together hand in hand along a path in the woods during our 32 years of marriage. Most of the time it has been a pleasant stroll. Yet sometimes the path has been rocky. There have been obstacles to maneuver around. Up to the mountain tops and down into the valleys we've traveled, helping one another, celebrating with one another, loving and living life.We walked the path together, always hand in hand. 

But now we have come to a fork. He must travel along one path. It is clear that I cannot go with him. I must travel my own path. Letting go is painful. At the moment, we are walking alone on parallel paths. We still have the other in sight. But the fork is veering off and soon we won't be able to see each other. I feel lost. Scared. Sad. Alone. 

God is with each of us, reassuring us He is still guiding us and we will each be alright. But like the child who falls and skins a knee, there are tears. It hurts. Our paths will meet up again. We will continue our journey once more. I trust in God and know He is in control.